Story:

We are raising money in aid of our friends who sadly lost their baby boy Aidan please read their story as follows:

“We are raising money in honour of our baby boy Aidan to support research and families with FOXP1 syndrome and Pulmonary Hypertension, two extremely rare conditions that Aidan had.

PH is a life limiting disease with no cure (PHAUK). Little is understood about FOXP1 which is a neurodevelopmental syndrome (FOXP1). The syndrome is not known to cause PH however it is known to affect the development of the brain, heart and lungs.

Aidan spent many of his 12 months in hospital. He had the best care possible from the experts in PH with an exhaustive list of procedures at Great Ormond Street Hospital and Alder Hey, yet still his little body was not understood.

It wasn’t strong enough to do justice to the beautiful little boy inside but he handled his challenges with grace and he brought us all so much happiness with his smile. As well as all of the hearts he touched, Aidan's legacy will be to move forward the understanding of FOXP1 Syndrome and PH disease. Thank you,

Jacs and Nadine Stanistreet.”